Pages

Good News

So I got a letter today about the things that were ordered for me. Hopefully this means I will be getting them soon. It will help me greatly with doing things on my own. I can not wait for the stuff. I am so excited about it. Instead of having rehab tomorrow, I am having it Friday because my instructor has an emergency she has to deal with. So hopefully I will have more to talk about next week.

Not Much to Say

This is going to be short today. I did not have rehab last week because of the weather. I am not having it tomorrow because my teacher has to help another client. So I will not have it till next week. There is not much going on with me. I will try to come up with something interesting for next week. Later.

Blueberry Muffins

So last week I made blueberry muffins. They actually came out good. I got to try the new ice cream scoop that was bought for me to use. I did not make much mess this time. I took the muffin cups out of the tray and filled them with the new scoop. It was nice not making a mess this time. It was much easier taking out the cups and filling them. I am going to cancel this week because there is going to be a lot of snow.

Where I Was

So I need to explain where I was last week. I was at the NIH or the National Institute of Health. I was there for the second time concerning my ECD or Erdheim-Chester Disease.

I love it down there. People are so nice to me. They also have really good food at the hospital. I know that typically hospital food is bad, but not at the NIH. Their menu rivals that of a restaurant. There is fish, chicken, steak, and pasta on it for dinner. Lunch and breakfast are equally as good. There is quite a selection of beverages and desserts too. I actually enjoy going to that hospital because of that reason.

This time was much easier then when I went in November of 2012. That week was horrible. I had no down time and kept going all week. At least this time I was able to breathe and had some time to relax.

It hasn't happened yet, but I hope that what I do does help people out with the ECD. I am going to go, I will catch you all later.