Remission
So today is the one year and one month anniversary of my remission. I know that it may not seem like a lot, but it is. No one typically goes into remission from Erdheim-Chester Disease, but for some reason I have. ECD is so rare that hardly anyone has ever heard of it. A lot of doctors have never even heard of it. I hope to help to change that somewhat. If anyone wants to learn more about the disease go to http://www.erdheim-chester.org/. That is the best resource.
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Of course you're in remission, it's because you're amazing & can do do the impossible! Look how far you have come in the past year, you should be really proud of yourself!
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