TSO Concert

So on April 7th I went to a Trans Siberian Orchestra concert again.. I went with Rich and my parents. They performed Beethoven's Last Night. It was great and I loved it. It was TSO's first time in Reading, so after the show they signed things. The show was over at about ten thirty, so by the time we went to the souvineer stand and got in line for autographs it was about ten fourty. They did not come out till around eleven o'clock. I stood in line and waited though. I stood for about fourty-five minutes by the time it was all said and done. It was so cool though. I got my t-shirt signed and Rich got his ticket stub signed. It was neat to meet them and to know how grateful they are to have people come to their shows. It was an awesome concert. My parents even liked it. It was in a place I have only been to once though. It was at the Reading Eagle Theater in the Sovren Center. I am pretty sure I misspelled that. Oh well.

Weight Loss

Well I have lost about 50 pounds in the past 14 months. I really haven't changed the way I have been eating. I am just exercising. I have been doing a lot of walking with my fiance, Rich, and now I have started riding his stationary bike. I am also doing things with my Wii. I have been doing my Wii Fit and have been doing my Wii bowling.

I went to the doctor's today and my triglyceride levels have really dropped. When I started seeing the endocrinologist, my triglcyrides were 1600 and now they are at 141. I am finally off my fish oil tablets and cut my Niaspan from 1500mg to 1000mg. I am so happy about this.

I know that many may not think that this is that important, but when you have been trying to come off drugs it is a gigantic deal. I have to get bloodwork done in 3 months, but this is peanuts compared to what I have been going through. Rich is so proud of me. His goal is to get me down to 160 pounds by the summer. He knows that it will happen.

I am happy that he has faith in me, because I know that I don't necessarily believe in myself. I am getting better at this. I think that I can hopefully do this. I know I am going to have to work for it, but I can do it. It will require me to do more walking and I am really enjoying riding the bike. That is something I never thought I would say. I am home for a couple of days and I miss riding the bike.

On a completely different note, remember people can comment on my blog. I do and will get them and it will help me out. Thanks.

Rich's iPhone

Well it is scaring me, but I am slowly learning to use Rich's iPhone. I have not done anything major yet though. Right now I am concentrating on learning how to work the iPod function. This phone is the only phone that is accessible for the blind and I want to get one. My biggest problem is getting the gestures down. Since there is no number pad, I have to learn the hand gestures. I think that this will be the hardest part for me. The phone can handle more than I think, I just don't want to break Rich's phone. He tells me that I won't do it though. I am getting much better than I was a few months ago. At least he is willing to let me try it. I need to learn somehow and luckily I have a fiance with one and he is ok with me trying it out.

In other news, I was listening to my book yesterday and I was halfway through chapter 26 and the battery died on me. It gives no warning just dies. Well actually it says low battery and then dies. It did that during the last Harry Potter book I was listening to. I was in the last chapter of the forth book and it died on me. I was so frustrated. Now I am on book five and it did it again. Oh well it is charged up now. There is about nine and a half hours to go. Then it will be on to book six. I really haven't been listening to it like I was. Getting engaged will do that to you. Also now that my nerve racking doctor's appoinment is over with, I am much better.

I am also not sure how it happened, but I still managed to lose a pound. When I went to the doctors I was 175 pounds and today when Rich weighed me I was 174 pounds. Since we met I have lost about 40 pounds. I am walking better and feel better with it gone. I really have not changed my eating habits, it is from walking. I am going in the right direction. I have not weighed this since before I got sick. Hopefully it will keep going.

Remission

So today is the one year and one month anniversary of my remission. I know that it may not seem like a lot, but it is. No one typically goes into remission from Erdheim-Chester Disease, but for some reason I have. ECD is so rare that hardly anyone has ever heard of it. A lot of doctors have never even heard of it. I hope to help to change that somewhat. If anyone wants to learn more about the disease go to http://www.erdheim-chester.org/. That is the best resource. 

Sigh of Relief

Well today was the day. I am still in remission from Erdheim-Chester Disease. It stinks that I am actually really upset about this. My next doctor's appointment is in 6 months and I do not have to get another MRI for a year. This whole concept really makes me sad. I know that it shouldn't, but it does. It makes me sad that a lot of the people in my life are at the hospital. I know that this is a very good thing, but it still upsets me.

My appointment was really short today. It is getting to the point where the doctor is just going to start calling me with the results. I did get to see Holland and all my friends in Rhoads today. That was very nice. I know that they are all glad that I just come to visit them now. I also showed off my ring and fiance.

He is waiting for someone to not like the ring. It is not going to happen though. Everyone was glad to see how happy I am. Most of them remember when this was not the case. I am very glad that I am in this place. It took awhile but I am there and hope to stay there.

Birthday

So today is my birthday, now I am officially 31 years old. Last night I went to Benihana's with my family and my fiance. It is a Japanese restaurant and it was great. On the 26 of December my family and fiance went to see the Blue Man Group in the lovely snow storm that we got here in Philly. Yes I know that we are crazy, but we went anyway. It was cool though, I got to meet one of the Blue Men and they kissed my program. He never talked though like they are supposed to.

I have spent all day with Rich. It is strange to be away from my parents all day. That is something I have never done before. On the other hand it has been great to spend the day with Rich.

I think that I am going to go for now. To everyone have a great evening and Happy New Year to all. I hope that 2011 is a great year for all.

Four Down

I finished the forth Harry Potter book.  It was 37 chapters long and was over 22 hours long.  Now I get to start book number five.  I really enjoy the BARD system.  It is allowing me to do something that I never liked doing before.  My sister always tried to get me to read the series, but I did not want to.  Now that I am able to listen to them, I do.  Well I am going to go for now.  Till later.